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Wednesday, October 23, 2013

Drew's Adventures


Drew went gluten free for nearly a year to help him not get sick. He did great! He self regulated and he felt better. Both he and John quit puking randomly and had more energy.
At the end of the school year he started to feel not so great again. Then he came home from school and said that he was feeling really sick. He laid down and didn't move again for the rest of the day. During this time he told me that it was hurting to breathe. Because Drew had such issues as a baby/toddler I went and borrowed a pulse oximeter to measure is 02 sats. His 02 sats were in the low 90's but his rate was in the 170's, which concerned his mommy. Eventually he followed the same path that he always follows and he ended up puking. Once he puked, he felt just fine. O2 sats went back up, heart rate when down and he was just fine. I looked into ideas online - dangerous, I know - and found a couple things that somewhat fit what he seemed to have. One said that if it was a problem with his heart he could reset it by sticking his thumb in his mouth and blowing as hard as he could. I had him try it - it's not like it could've done anything worse than what he was already going through. It worked for a minute, his heart rate dropped back to a normal range but then it went right back up. So we went to the Dr again to see if they had any ideas. They wanted to do an EKG to see if they could see it when he was feeling normal - they couldn't. We had an appointment with a cardiologist made and had to wait another month to see what he was thinking of doing. 
Drew did great with this. He thought it was kind of fun, until they accidentally pinched him with one and made him bleed. He was fine once they took that off though. Luckily Drew had just overcome his obsession with not letting anyone see him with no shirt on. In primary they told them that boys should be modest too and that they didn't need to take their shirts off! Yes, yes, they said that. Honestly I wanted to beat one of them. It took over two years for us to convince him that it was okay if we saw his chest.
The cardiologist said that he thinks Drew has an extra node in his heart. So half his heart is going super fast while the other half is normal. Not always, but sometimes. Puking will reset the heart and bring everything back to normal. They wanted to hook him up to a monitor for a month but I nixed that idea. Usually when he has his episodes they last for a few hours, which gives us enough time to get to a Dr's office and get an EKG done. Drew hasn't had another episode since the cardiologist so it's just a waiting game to see what the tests say next time he has a problem.

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